Daily Life With Undiagnosed Congenital Hypothyroidism

Hypothyroidism is a disease which affects millions of people worldwide. It is far more commonly found in women than men. If you had a group of 10 people with Hypothyroidism most likely 7-8 of them would be women. Hypothyroidism conditions tend to be related to autoimmune illnesses which women are far more likely to suffer from. Could it be related to a more complex reproductive system as women's hormones are always changing?  Many women develop thyroid issues after menopause.

Can Hypothyroidism be environmental? Is it all genetics? Sometimes it's due to surgical removal of the thyroid gland itself. 

Last but not least we now have Congenital Hypothyroidism as another way to become part of the Hypothyroidism Club. Congenital is when you are born with either no thyroid, underactive or in my case Ectopic. Ectopic is when it isn't where it is supposed to be. It would be like trying to use the remote for your TV to control your oven. No, it's not going to turn the oven on no matter how many times you try.  Be adventurous and give it a try. 

Since the 1970's newborns are tested soon after birth as one of the many standardized tests. When they are found to be new members of our club they are started on treatment immediately.  Most of these newborns will go on to have normal lives with little to no long-term consequences as long as they continue monitoring and put on one of the possible medications.

Now, having outlined some of the qualifications to become part of our exclusive club I have a question,

where does the person fit in that has Congenital Hypothyroidism that didn't get diagnosed until 3rd grade?

There was never any of the education from other club members that there is now.  To the best of my knowledge, the "Club" didn't exist. There was zero awareness.  Still to this day with the knowledge I finally have due to Pinterest and the wonderful contributors I haven't been able to find anyone with the life long membership qualifications like mine.

Over the past year, I have reached out to many endocrynologists, authors and websites for information or guidance about Congenital Hypothyroidism with no response.  I've offered to be a case study if need be to get answers to my status in the "Club" and nothing.  I'm looking for some clarification of my status because I have more than paid my dues.




















   Faulty Thyroid- any of the above-mentioned conditions qualifies you

   Family Member - only if semi-educated in our "special qualities"  *subject to change with no notice. Also, r                                                          remember it wasn't my choice to be related to you either.

  Boyfriends/Girlfriends- education and understanding required. We cannot always be our                                                                                                  charming witty selves

  Friends- all the aforementioned and defending us to others when we don't make it to an event


Membership Requirements

  • Those with faulty equipment there's no way out!! 

  • Membership Dues- admission is FREE but the dues are high!!! You will not escape them

  • Family members and others will be terminated if you become critical, cruel or otherwise accusing direct members of faking, being dramatic or anything of the sort. This behavior will not be tolerated

  • All rules are subject to change with little to no notice.

DisFunctional Thyroid Club

           Membership Card

   EXP--   NEVER

   Name- The Special One

Membership Terminates If...

Sun For Vitamin D

Healthy Diet


Official Members Practices Should Include The 6 Surrounding Habits


Plenty of Water

 Lots Of Fresh Air

   Oh, Now I See It

  It is simply amazing how much more clearly I see things now in regards to my life.  I don't think it's at all possible to thank everyone who has done so much work on Congenital Hypothyroidism that I'm able to use to educate myself and try to help others. 

    When I came across this clip today it was another huge Ah Ha moment.  There are so many of them that at some point and time I've experienced definitely way more than I should have or do. 

     Wow, after just reading this list again there are only 2 that I've never had which would be the bulging eyes and cataracts. In my opinion my eyes are set to deep to ever bulge and there's still lots of time for the cataracts.  It's not conclusive but I was supposed to go to a specialist in Boston in regards to further testing for Glaucoma.

    As I said in a prior post I've had glasses since the 1st grade.

Being so long ago I don't remember what the initial exact reason was but now I know.  Maybe 3-4 years ago I started having a problem reading but maybe 7-8 years ago night driving became an issue.  If I knew where I was going I was okay but anyplace else, no way.

    So many times people would ask why I was winking at them but I wasn't, it was the one eyed twitch.  My eyes do have the sandy beach feel and if I rub them I get a film like. 

     Yes, I'm sure some of it comes with age but this has been going on since my younger days. 

    Ah, and I'm faking everything from what I'm still being told, haha!!!  I'm just so grateful to social media and all of the contributors who have helped me see my life more clearly.