Blows My Mind
From sea to shining sea it simply blows my mind how little education and awareness there is in regards to Congenital Hypothyroidism. Late last night I was once again reminded of the fact that for those of us that have this disease there is nothing consistent with the treatment or knowledge being offered by the medical profession.
It's as though it is this phantom that no one seems to be able to get a hold on. Congenital Hypothyroidism is something that effects 1 in 4,000 births world wide so why is there so little consistency? Yes, there was no testing when I was born in the 60's but what has happened in the last 50 years?
Congenital Hypothyroidism does exist despite the fact that normally you don't see it when you look at a person with it. Just because you can't see it doesn't mean it's not there. Many people believe in some type of Higher Power so unless it's a tangible object you can't see it, but it's still there for you to believe in. Why aren't we believed as to the toll it takes on our everyday life?
I'm happy to say that I have finally developed enough confidence in the website I've taken forever to build to actually start to boost it. In my promotion of the website I woke this morning to another victim of CH sending me a message about her situation, she lives in Ireland. This woman has some of the same issues with her doctors there as I do here. To just be handing her a prescription for anti-depressants with no full screening, no idea about low vitamin D as a result of CH or anything else? Sad part is that is exactly how I crashed.
Handing us the wrong prescriptions or telling us it's just stress, age, depression or postpartum doesn't help us. It's amazing how the medical profession either doesn't care or just can't or won't take the time to listen and put the pieces of the puzzle together, Believe it or not we do have better things to do than either keep running to the doctors or feeling like crap. Oh, if only we could go potty we would be happier but seems to be a luxury we also have to fight the phantom for.
Yes, it"s too late for me to recuperate what I lost from such a late diagnosis so I will continue to fight. I fight for the basics meaning financially, someone to understand me and my illness enough to genuinely love me and to gain some confidence in myself. For the Grace of God I pray for the little ones and all the children to come into our world of modern science. I hope that if they have CH they won't have to dig into social media to get answers. I pray they will be medically taken care of and made aware by how loved they truly are.
Wow, that was a rant or maybe a plain ole ti-raid and I apologize. Maybe I'm still a bit angry, you think. Please feel free to drop me a note if this blog is in-appropriate.